How we manage your personal data

How we manage your personal data
Want to change the way we communicate with you? Read how we use your data and how you can easily change the way we get in touch.

We use your information to help us unite with you to take action through raising funds and engaging in the movement to create the a world without dementia.

Personal data – what is it?
Your personal data is information that identifies you; such as your date of birth or your address or describes you and reveals something about you, for example your health information, company email address or your opinions. If you have engaged with the Society previously, we will hold information about this, for example what campaigns you have joined, whether you are a dementia friend and/or if you have raised funds for us. 

However we are connected, Alzheimer’s Society will respect your privacy and your rights and only process information about you where it has a legitimate need to do so.

How we use your information

To help you take action
Where you sign up to take part in an event or a campaign or donate money to the Society, we will collect, hold and use your information to help you undertake that action. This may mean contacting you with information about the action, or sending you resources to help you take part. We do so to ensure you have the best experience possible, we fulfil our agreed commitment to you and the aim of the action is achieved.

Sometimes we may ask for more information about you, such as your profession or age. You do not always have to provide this, but, if you choose to, it helps us to personalise news or updates which may be interesting to you and also to assess the effectiveness of our campaigns and awareness materials.

When you sign up to take part in activities, we may ask you to provide information to enable us to provide a safe and suitable environment for you. For example, if the activity involves some risk or physical exertion (such as fundraising treks), you may be asked to provide some information about your health. If as part of an event we will be providing you with food, we may ask you to disclose any dietary requirements you would like us to cater for so you have the best experience possible.

To send you information about future ways you can take action
By supporting us, you're doing something incredible to help thousands of families affected by dementia. We'd love to keep in touch, and update you on the latest news, including the amazing work we do with our services and research, and how you can do more to help with fundraising, campaigning, or volunteering.

With your consent we will keep you up to date with our news by email, SMS, telephone or social media and let you know how you can continue to support us and take part in future action.
In order to support our fundraising and charitable activities, we may also keep you up to date by mail. You can, of course, let us know any time you no longer want to receive these letters or change your preferences.

To promote the work of the Society
It makes a difference if, when explaining the work of the Society, we can use real-life stories and information to bring this to life and show the impact of dementia and how individuals are uniting together to take action.

For this purpose we may take photographs or footage at Society events to use in future marketing materials. Where this is going to happen, you will be informed at the start of the event and given the opportunity to choose not be photographed.

Where information is collected that clearly identifies you (for example, a picture where you are the focus of your story), we will explain beforehand that we’d like to do this and what it will be used for and ask you if you are happy for us to use it for these purposes. You will be given regular opportunities to confirm you are still happy for your information to be used and we won’t use your information in any different way without your agreement.

Anonymous statistics about supporters’ participation may be created from the information you provide and shared with relevant and appropriate partners. This will be done to highlight the work of the Society and size of the movement for change.

To analyse the effectiveness of our work
As a charity, it’s really important to us that we ensure we are spending our money and resources effectively and efficiently. For that reason, we may analyse the details you have provided us along with further information about you that we have obtained from public and/or private sources. In some instances we may make use of additional factors such as demographic information and measures of wealth to help us better understand the persona of our supporters.

We do this to help us understand why people are motivated to support Alzheimer's Society, and to help us create a fuller and better picture of our supporters. This enables us to communicate with our supporters more effectively and appropriately, and to reach out to individuals who may wish to give additional support with a further monetary gift or volunteer their time/services.

We may contact you and ask you to take part in market research opportunities or ask for feedback. Participation is completely voluntary but it enables us to know what we are doing well, but equally what you feel we could be doing better. This will help us ensure what we are offering as opportunities for people to get involved is relevant, appropriate and helps us in achieving our goal of creating a word without dementia. You can opt out of being contacted about market research at any time by contacting us.

Sharing your information
Alzheimer’s Society does not sell your information to other charities or organisations.

The Society does use suppliers to help us fulfil orders and engage with you. We’ve undertaken due diligence on all these organisations and have entered into contracts requiring them to only process your information for the purposes we instruct them to and in a safe manner.

If you sign up to take part in an event which is hosted or organised by a third-party, the Society may need to share relevant information with them which is necessary to help ensure your safe participation.

If you sign up to take part in an event through a corporate partnership with your employer, limited depersonalised information may be shared about your involvement with them.

With your consent, the Society may pass your information on to media organisations to use to promote the work of the Society.

The Society may need to share information with government agencies where we have a legal obligation to do so (for example, with HMRC for gift aid purposes).

Alzheimer’s Society will not share your information with any other organisation without your consent other than under the following circumstances:

  • With the organisers of events you’re attending as long as it is justified and lawful;
  • If we are required to by law e.g. to the police if we agree it is essential to the prevention or detection of a crime;
  • If we feel it is in the vital interests of yourself or another person for example in a medical emergency.
  • Receiving information from third parties

Alzheimer’s Society will only receive information from third parties about you in the following circumstances:

  • Where you have donated money via a third party platform
  • If you have signed up for a third-party event and are raising money for Alzheimer’s Society
  • Aggregated information about you (for example your age range) collected from publically available sources
  • Information that you have place in the public domain

Where this is the case, or in any unique circumstance not covered by the list above, we will ensure you know this has happened and explain what kind of information the third party has given to us.

Storing your information
We keep your information only as long as is needed for the purpose we were collecting and using it for and then we dispose of it securely. Alzheimer’s Society has a robust Schedule for securely holding and disposing of supporter information. How long we keep your information depends upon our relationship with you.

The record we keep of your interaction with the Society as a supporter will be kept for up to ten years from the date of our last engagement with you. After this point, your record will be anonymised so you are not able to be identified from the information held.

Some information sets not kept in our supporter database (for example, event registration forms) will be kept for less time. Once the business need to keep information has passed, the Society will ensure that it either disposes of this information, or anonymises the information so that you cannot be identified any more.

If you ask us to stop sending you direct marketing material, we will need to keep limited contact information about you to make sure we do not mistakenly send you direct marketing in the future. We’ll keep this limited information for 10 years.

Where is your information held?
We hold most information on our central IT system which meets international security standards. Some information may be kept in a paper record format, but where possible this will be transferred to an electronic record and the paper record securely disposed of.

Where we use other organisations to help us operate they may hold information outside the UK. However, where this is the case we make sure that your rights are protected through engaging in appropriate due diligence and robust contract management.

If you support the Society by donating money, we have to keep records of this in our accounts for 7 years.

Security and confidentiality
Alzheimer’s Society takes care to ensure the security of your information in use, storage and transmission and that it is only accessed by verified persons who have the necessary authority. All of our people who have access to your personal information are obliged to respect the confidentiality of this information and we deliver training to make sure this happens.

Your consent
If we are using your personal information on the basis of your agreement then at any time you can withdraw your consent, by telephone, email or letter, and we will not carry out any further processing on that basis.

Further rights
If, at any time, you want to see what information we hold on you, receive a portable copy of it, ask for corrections to be made or ask us to stop using your information in any way, then please do contact us and we’ll do our best to respect your wishes.

How to contact us
If you have any questions about how we are using your information then you can contact us as follows:

  • by phone to Customer Care on 0330 333 0804;
  • in writing to Customer Care, Alzheimer’s Society, 43-44 Crutched Friars, London, EC3N 2AE
  • or by email to enquiries@alzheimers.org.uk

There is also an online form for general enquiries on our web site alzheimers.org.uk.

If you wish to receive a copy of your personal information or ask us to correct the information we hold about you or to stop using your information then please contact the Information Governance Team at:

  • Alzheimer's Society, 43-44 Crutched Friars, London, EC3N 2AE
  • or by email to: information.governance@alzheimers.org.uk

Complaints
If you are unhappy with how we are processing your information then you can contact us as outlined above including using the on-line feedback form. If you are still unhappy after receiving our response, you can raise your concern to the Information Commissioner’s Office for them to investigate. 


How we use cookies on dementiafriends.org.uk

What are cookies?
This website uses cookies. A cookie is a small text marker stored on your computer that enables us to track the use of our website. Learn more about cookies on aboutcookies.org

This site uses cookies in order to provide a service to visitors. No personal data is stored in cookies which are used to 

  • to allow users to log in to the web site
  • to check that cookies can be set and therefore determine whether a user is able to log in
  • to store a reference to form data that is stored on the web server.
  • to help us better understand how visitors engage with this website. 

Managing cookies
Cookies help us to ensure that our website is as good as it can be for our users, and that all our digital marketing is as efficient as it can be (so we spend less money). Cookies pose little threat to your privacy, but some people may want to turn them off anyway. Please be aware that if you disable all cookies, some elements of our website may not work properly (such as registering as a Dementia Friends Champion).

Firefox: Enable and disable cookies that websites use to track your preferences

Safari: Managing Cookies

Google Chrome: Manage cookies

Opera: Security & Privacy in Opera

Internet Explorer: How to manage cookies in Internet Explorer 9, How to delete cookie files in Internet Explorer
The following is a complete list of all cookies


The following is a complete list of all cookies

Website Content Management System:

PHPSESSID

A unique identifier for the user's session. This allows our website to show you information based on things you've told us on previous pages. For example, after logging in, pages visited in the same session can include content specific to the user who logged in. A session ends when the user exists their browser.

ASCCPref

Aerian Studios Cookie Cutter Preferences. If you click 'Allow' in the bar at the top of our site which asks if you would like to allow cookies, this cookie is set in order that the bar does not appear on other pages.

Website analytics:

We use the Google Analytics package to better understand user behaviour on our website. Google Analytics uses cookies to track visitor interactions. These cookies are used to store information, such as the time of your visit to our website, whether you have been to the website before, and where you come from before entering our website. Information collected in this way is anonymous and individuals cannot be traced. This information allows us to improve our website, for example, to assess the impact of and develop campaigns and services. Every computer and device connected to the Internet is assigned a unique number known as an Internet protocol (IP) address. Google Analytics will also collect your IP address. This information allows us to know approximately where in the World you and our other website visitors come from, but not your IP address. For more information about Google Analytics, please see its terms of service and privacy policy. If you are concerned about the use of your data for this purpose please investigate the Google Analytics Opt-out Browser Add-on.

__utma

This cookie is typically written to the browser upon the first visit to your site from that web browser. If the cookie has been deleted by the browser operator, and the browser subsequently visits your site, a new __utma cookie is written with a different unique ID. This cookie is used to determine unique visitors to your site and it is updated with each page view. Additionally, this cookie is provided with a unique ID that Google Analytics uses to ensure both the validity and accessibility of the cookie as an extra security measure.

__utmb

This cookie is used to establish and continue a user session with your site. When a user views a page on your site, the Google Analytics code attempts to update this cookie. If it does not find the cookie, a new one is written and a new session is established. Each time a user visits a different page on your site, this cookie is updated to expire in 30 minutes, thus continuing a single session for as long as user activity continues within 30-minute intervals. This cookie expires when a user pauses on a page on your site for longer than 30 minutes.

__utmc

Historically, this cookie operated in conjunction with the __utmb cookie to determine whether or not to establish a new session for the user. For backwards compatibility purposes with sites still using the urchin.js tracking code, this cookie will continue to be written and will expire when the user exits the browser.

__utmz

This cookie stores the type of referral used by the visitor to reach your site, whether via a direct method, a referring link, a website search, or a campaign such as an ad or an email link. It is used to calculate search engine traffic, ad campaigns and page navigation within your own site. The cookie is updated with each page view to your site.

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This cookie is used by Website Optimizer and only set when the Website Optimizer tracking code is installed and correctly configured for your pages. When the optimizer script executes, this cookie stores the variation this visitor is assigned to for each experiment, so the visitor has a consistent experience on your site. See the Website Optimizer Help Center for more information.

Video content:

To keep costs down we host our video content on YouTube and then embed them in our website. YouTube uses the following cookies.

PREF

This cookie is a randomly generated number used to identify session preferences and is set to expire after 20 years. To find out more about YouTube and your privacy please visit this page on their website.

VISITOR_INFO1_LIVE

This cookie is a randomly generated number used to estimate user bandwidth and is set to less than one year. To find out more about YouTube and your privacy please visit this page on their website.

use_hitbox

This cookie is typically a randomly generated number that expires when the user exits their browser. To find out more about YouTube and your privacy please visit this page on their website.

ACTIVITY

This cookie is typically a randomly generated number that expires when the user exits their browser. To find out more about YouTube and your privacy please visit this page on their website.

HSID

This cookie is typically a randomly generated number that expires when the user exits their browser. To find out more about YouTube and your privacy please visit this page on their website.

SSID

This cookie is typically a randomly generated number that expires when the user exits their browser. To find out more about YouTube and your privacy please visit this page on their website.

LOGIN_INFO

This cookie is typically a randomly generated number that expires when the user exits their browser. To find out more about YouTube and your privacy please visit this page on their website.

s_gl

This cookie is typically a randomly generated number that expires when the user exits their browser. To find out more about YouTube and your privacy please visit this page on their website.

SID

To find out more about YouTube and your privacy please visit this page on their website. 
demographics This cookie is a randomly generated number used to identify session preferences and is set to expire after 20 years. To find out more about YouTube and your privacy please visit this page on their website.

Twitter:

The Dementia Friends initiative has a twitter account @dementiafriends. Twitter uses both session cookies and persistent cookies to improve their service including understanding user interaction, monitor aggregate usage and web traffic routing. 

k

This cookie is a randomly generated number used to identify session preferences and is set to expire after 1 week. To find out more about Twitter and your privacy please visit this page on their website. 

guest_id

This cookie is a randomly generated number used to identify session preferences and is set to expire after 1 month. To find out more about Twitter and your privacy please visit this page on their website.

original_referer

This cookie is a randomly generated number used to identify session preferences and is set to expire when the user exits the browser. To find out more about Twitter and your privacy please visit this page on their website.

external_referer

This cookie is a randomly generated number used to identify session preferences and is set to expire after 24 hours. To find out more about Twitter and your privacy please visit this page on their website.

_twitter_sess

This cookie is a randomly generated number used to identify session preferences and is set to expire when the user exits the browser. To find out more about Twitter and your privacy please visit this page on their website.

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This cookie is a randomly generated number used to identify session preferences and is set to expire after 1 month. To find out more about Twitter and your privacy please visit this page on their website.

Facebook:

Dementia Friends also has an associated facebook page. Facebook uses the following cookies.

datr

This cookie is set to expire after 2 years.

lsd

This cookie is set to expire when the user exits the browser.

reg_ext_ref

This cookie is set to expire when the user exits the browser.

reg_fb_gate

This cookie is set to expire when the user exits the browser.

reg_fb_ref

This cookie is set to expire when the user exits the browser.
wd This cookie is set to expire when the user exits the browser.
x-referer This cookie is set to expire when the user exits the browser.